Friday, December 19, 2008
Tuesday, December 9, 2008
He still follows Louie everywhere. He likes to wear Louie's wrist sweatbands that he uses to wipe his drool (thanks Amy!). He pretends to wipe his drool even though he doesn't have any. Ace brings me Louie's braces to put on his own feet. I tell him to be thankful his arches are perfectly fine and that he doesn't have to wear braces but end up putting them on him for a minute anyway. Because whatever Louie does, wears, "says", is what Ace wants to do, wear and say. And so it goes with siblings.
Wednesday, December 3, 2008
Sunday, November 23, 2008
Thursday, November 13, 2008
Both children are asleep so I have this moment of uninterrupted, guilt-free time on my hands. I sit here among the above pictured clutter and wish I could make up my mind on whether I will be a motivated, list-checker or slacker blogger. Slacker blogger it is!
Wednesday, October 22, 2008
This picture was taken in the lobby at our 2 year follow up with Louie's cardiologist. It's excruciatingly difficult to get two "walker" walkers together in a photo frame. I was there alone. With Louie but adult alone. Chris was traveling for work. We didn't reschedule the appointment because apparently you don't just whip in to see the cardiologist and appointments are made well in advance. Unless it's really serious.
Saturday, October 11, 2008
I bought a $45 bra. $45? I haven't worn a real bra in 4 years. Just dingy white Hanes sports bra, with an occasional gray one for color and variety. At a time when I should be thinking about a 3 month emergency fund, I buy bras?
Until just last week I have never stopped to shop the dollar section at Target.
In light of my superfluous spending, I go dollar aisle style to find useful, cannot-live-without cheap stuff:
2 plastic scrubbers with screw on lid for dish washing liquid both of which have now been ground up by the disposal
1 "Go Green" beanie for ages 7 and up (yes, my children are under 3)
1 Elmo book with squeaky ball attached
4 pack magnetic yellow plastic refrigerator clips
2 pack Halloween themed plastic bowls for Louie to use for cereal
1 pair round earrings, white with brown flowers. I will never wear them. Never.
Maybe next week I'll get that microplane rotary grater I've been eyeing at Williams Sonoma. That's a joke. I would never buy one of those. How do people come up with this stuff?
So far we haven't seen any regression; he has actually made progress. He is walking unassisted and without prompting about 70% of the time, making transitions between two different surfaces and going over door thresholds. He's also beginning to walk on carpet! And, he just started babbling "buh"! Trust me, that's big stuff.
Wednesday, September 17, 2008
Monday, September 8, 2008
I understand. Seems like every time you turn around I'm complaining or upset or the ever-present and somewhat dramatic "grieving". Okay, so fair warning, this is a dramatic, over-the-top, I have a knot in my stomach post. Shall we?
Wednesday, September 3, 2008
I am completely blogocentric. At least I can admit it. A friend recently asked at "craft" night (not much crafting gets done), "So, are you going to tell us about whatever whatever or do we just need to read it on your blog?" She was so right! I have been referring people to my blog instead of just telling them myself! I mean, really, how lazy is that? Actually, it's just to build their suspense and what fun would it be for them to read if they'd already heard everything it says, right? Or is it better in person, the real person telling the story? Have I become too blog-headed to be able to tell the difference?
Wednesday, August 27, 2008
Thursday, August 21, 2008
My mom left today after a four day visit and emailed when she returned home. She commented "Louie makes my heart hurt if that makes sense. It's the only way to describe him right now." I understand exactly what she meant. It's the same way I'm feeling right now. My heart just hurts for him. For me. For his grandparents.
Friday, August 1, 2008
Tuesday, July 29, 2008
Ok, so the boys are in bed. I can hear Louie's "Pure Relaxation", or whatever zen music a 3-year-old- with-William-Syndrome is in to, drifting from his room. He goes to bed listening to it every night. Sometimes he just lies beside his CD player, presses play and sucks on a pacifier (he doesn't use them during the day, supposedly) he had stashed for these moments. He turns it up too loud, well, too loud is an understatement. He turns it up as high as it will go and I have to rush in and say "Turn that 'Pure Relaxation' down right now! You're going to wake your brother!"